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A podcast for people affected by MS (Multiple Sclerosis) ...

MS stories, MS news, and coming to know you’re not the only one.

Whether you're newly diagnosed with MS, a fully-fledged person with disabilities or want to find out more about this chronic, neurological illness, this show's for you.

Hear from experts, influencers and patients.

The show is created by Bron Webster - she’s been living with MS for over 25 years.

This podcast is home of the MS ACTION TAKERS (R) . You can take action by being an MS Action Taker (R).

We’d love you to get in touch. Ask questions, comment about the episode, tell us what you want to hear by emailing  at this address - hello@multiplesuccess.co.uk

The best way to spread the word about MS and the show is by rating and reviewing the podcast - it seems to increase the visibility.

 

May 26, 2020

Holly is a young person with Primary Progressive MS. Her diagnosis story is one of frustration.

She was aged 24 at her eventual diagnosis but she had to go to her Doctor 3 times and kept being told ‘there’s nothing wrong with you’. Using some great advice from her Personal Trainer, Holly was eventually sent by her Doctor to hospital. Several MRI scans later, one using contrast dye, the diagnosis became clearer. 

“If it was a female consultant it might have been a bit different”

We talk about Holly learning how to self-catheterise and also clear out her bowels - because with Multiple Sclerosis these things are common, but not easily spoken about.

“I look at the smaller picture … I look at each day rather than getting through a month”

“If I went to part-time, that’s me letting the MS win”  

Initially, she was diagnosed with demyelination and was told that because of the ‘single’ event it could not be classed as ‘multiple sclerosis’. This changed after further scans.

The MS Society asked Holly to help in the Parliamentary campaign to gain approval for Ocrevus (the only Disease Modifying drug presently available for Primary Progressive MS.

 

 

Copyright Bron Webster 2020